Wednesday, April 21, 2010

My little ones latest news


So today we took another trip to Children's Hospital. Three weeks later, and yes there is still pain. To my surprise, there may be a hair line fracture. A what..... well as the Dr. said, Even though there are rods that are supporting the leg, the tumor, is not filling in with the donor graph that we used in 2008.
A few low grade fevers and still no full hole. Oh well. What to do what to do.
Dr. Flying-cloud said that next month to see Dr. Song, and the options are as follows;
Take the rods outs and re graph the leg.

For those of you who are wondering where his leg broke check out the picture. Just before the rods are crossing over one another is the tumor. The outer sides have filled in a bit but the center and the other outer side has not filled in. The growth or lack there of has been the same since last November.

So, Elijah is grounded for now. No track or gymnastics. Until further notice. Poor little one. The weight of the world on my shoulders and now I share the burden with you.

The miracles we see and hear

While driving to D's appointment there was a girl, not sure of her age, that had called in to Spirit 105.3. Her name is April. She had called in to say that her round of chemo went well. She was feeling sick. This struck my heart instantly. As I listened, all she said was this, "I don't need prayer or anything... please pray for my mom." How amazing. This child of God, called for her mother.

On the way back, we saw an accident. Three cars on the 520. A pregnant woman and her husband in the front. Instinctively, my words went to God to pray.

It is strnage how these simple acts of life make you remember just how present God is in our lives.

Tuesday, April 20, 2010

Frustration felt abroad

So, as I read Tammy's post, I too have realized that her frustration is shared by thousand of other parents who are upset with their child's school districts. I must say how truly blessed my two boys are. The road to get them here was long and hard but I believe that both Daivon and McKenzie are in a better place.
Daivon, who has Aspergers, is confronted every day with the choice to do what is right or do what is impulsive. So far the latter has been winning. How do we correct this child? Drew, his BMAC, has been right by D's side. Much respect to him. I would not have the patience to handle D all day. Now that he is 13 it is even worse. I see D struggling to understand why the world doesn't think the way he does and why everyone has to fit into this cute perfect square box. IF we were to fit in there don't you think that everyone would be the same.
Next is McKenzie. The most loving compassionate caring child I have ever met. Talk about your ADHD/ Autism in overdrive. I joke with Bit about sending him to camp 2 weeks every summer just to get a break but in reality I miss him. McKenzie is now a reader. Yes. Fourth grade and he saw the light. Again with that box. While homeschooling my children, I learned that they will develop skills at their own pace. So again what is wrong with the world?

Why are people so stupid to children born with mental disabilities? Why do you stare at our children who are 7 years old and throwing temper tantrums? Why do you stare and judge us a parents? Why can't you teach your children that not everyone is the same and extend that olive branch? Don't feel sorry for us parents because we have learned so much having a child with disabilities.

  • Strength
  • Endurance
  • Wisdom
  • Just how naive the world is
  • Love
  • No matter how bad things are....it could be worse
  • Flexibility- because when thing's go good the bottom will fall out soon
  • Commitment
  • Coffee
  • Life- we are the norm
So to Mr. Rawley;
I understand that your teachers at school may not understand you and sometimes you may not understand yourself but just remember that no matter what you do, where you go you are one of a kind. Sure, you may do things because they seem like a good idea at the time and you get in trouble but keep in mind this inspiration: An armature built the ark and professionals built the titanic.

Love you

Thursday, April 15, 2010

Eagles don't flock

Yesterday was amazing. I saw an eagle that was soring over 405. I was amazed at his beauty. The sight of an eagle so close to home made me think. Why do people say that birds of a feather flock together? What birds are they talking about? Why is that a saying that parents use still today. My ahh haa moment...

I am an eagle!!!

I believe that I am truly like this bird of prey. I have many friends but none that I "flock" with. I go throughout my day meeting and greeting many faces but return to continue my solo journey. Many ask me how do you handle so much and yet wake up every morning with a smile. Easy, I don't flock. Sure, I have a group of gals that meet up at the Y, but just like the teller in the bank, no deep flocking happens. I think that in order to focus on what needs to be done you just soar. I think that being preyful of my situation and taking charge, I have managed to control as much chaos as possible.

With that being said each day bring new challenges. I managed to get my workout on last night from 8-9:30. After that I went to hang with my mom in the hospital. I stayed till midnight. Back up at 6:30 this morning to face another day. I rather enjoy my moments to ponder as I drive from place to place. It gets me in touch with my inner self and gives me prayer closet time with God.

Tuesday, April 13, 2010

M.I.A

So, many of you have probably realized that I haven't blogged in a few days. Since Easter. Well here are the fun and yet mind blowing reasons.
The boys had Spring break last week so that meant party's at night and attitudes in the morning. Both Mathew and I worked so that left the boys in many different directions. Elijah spent Monday and Tuesday with his Oma, McKenzie joined him on Tuesday. Mathew was off Monday but had an appointment in Seattle so Bit went with. Daivon, of course, stayed home because he is a teenager now and wants nothing to do with his brothers. Oh well. Since Daivon and his little friend Aaron were there, they decided that it was okay for them to play games online and download.....VIRUSES, WORMS, TROJANS.
I gotta give my boy some credit, nothing is ever small with him. Way to go D, you just gave your mom a migraine. That was enough to blow a gasket.
Tuesday was my dad's birthday and for the first time in a long time, I was able to take him out to dinner. We went to the Olive Garden and had fun. Knowing that Matt and I were busy I convinced my dad to take all 3 boys. Thank you Lord. I needed those three days to breathe and think and ponder how to fix my clearly infected computer.

Silence is great but I have noticed that I have been a caregiver most of my life and didn't know what to do. Oh well.

The weekend went well. Tatiana and Tajanay were over. We hadn't seen them since last summer. It was nice to have 5 children at once. I like it because the ages are close. Daivon being the oldest at 13 today, Tajanay is exactly 3 months to the day younger than D,her birthday is 7-13.
Next in line is Tatiana. She just turned 11 at the end of January followed by McKenzie who is 10 as of January. Elijah is in a class of his own.

Elijah had cooking at the YMCA wagon wheels. I love the YMCA....

Oh gotta get back to work and have a birthday blog to post.

Quick note, Mom is in hospital again and is moving again, that is a whole other blog within itself. I will keep you posted.

Sunday, April 4, 2010

The title says it all

Today is my favorite time of year. It is the time when the spring bulbs began to share their hidden secrets, the lawn mowers begin to sing, and my Lord and Saviour reminds us that HE is in control. I am comforted by this very thought. I see the amazing creations that he has made and I am humbled.
I got the morning call from my dad; "He is risen!" he said. Now every good Lutheran knows the response to this powerful statement. I then called my friend Ginny and said He is risen, she stumbled but then remembered and completed the phrase. I love my faith. I feel proud to share the beliefs with my friends and lucky that we live in a place where Jesus is welcomed.

Have a blessed day.

He is risen, he is risen indeed.